A mother’s journey to find normal after losing a child, adding to our family and living through 2020
In August of 2017, our family was the happiest we had ever been. Our four big kids were finding their way and thriving. Our two oldest boys were 13 and 11 years old. Our daughter was 9 years old and our youngest son had just turned seven. And, we were nearly halfway through what seemed to be a normal, healthy pregnancy with a baby girl, Mary-Linda, who we were expecting to arrive near the end of the year. Life was good! Until, it wasn’t.
In one moment, everything changed. It was still summertime and I left the kids at home with their dad so I could run to my 18 week appointment. I had been unable to find the baby’s heartbeat on the fetal heartbeat Doppler the night before, but I shook it off as user error and tried to put it out of my mind. At my appointment, my greatest fears were realized and I learned that our daughter’s heart had stopped beating. The next few days, months and even years have been a struggle to find a new normal for us. Our life after losing our daughter, Mary-Linda is so different from our life before.
We are still trying to figure out what normal looks like. For a year, I continued to work in the same capacity I had worked in before Mary-Linda’s death. I loved being busy and I loved my job. It seemed right at the time. We spent that entire year going to therapy, doctor appointments, and visiting with specialists. I wanted so badly to pinpoint what happened to Mary-Linda, so we could move forward with as much information as possible. And, as it turned out, there was a diagnosis and a cause of death. Mary-Linda had suffered a Fetal Maternal Hemorrhage (blood loss/severe anemia) and her heart had stopped beating. The medical professionals missed alarming red flags in my bloodwork and did not follow protocol to refer me to a specialist. I learned all of this, as I researched this condition and found the blood results from early in pregnancy. These “problems” were never discussed with me, but the specialists I met with to prepare for another pregnancy, assured me that Fetal Maternal Hemorrhage was not something that happened to the same mother twice. I worried that something was not right after I delivered Mary-Linda silently and that was making it more difficult for us to get pregnant again. For thirteen months we prayed, we waited and we kept hunting for answers.
In September of 2018, after having a chemical pregnancy the month before, we found out we were expecting again. It was exciting and terrifying. We had a fertility doctor, a primary ob-gyn and high risk doctor all working with us. After the initial visits to confirm pregnancy, we would alternate seeing the ob-gyn and high risk doctor every couple of weeks. Each visit with the high risk doctor they would check for fetal anemia. I also stopped working outside the home around the same time I became pregnant. It wasn’t my intention to make this my new normal, but it sure was a huge blessing. I was surrounded with people, family and friends who loved me and supported me. I ended up really enjoying my pregnancy and soon found out we were pregnant with a boy. My father passed early in the spring and we named our baby boy after him. In May of 2019, baby Jimmie Josiah El-Hakam joined our family earth-side.
This last year has been anything but normal. We had a baby. We moved to a different home. I started a new job, was laid off from that job because of COVID-19. Our oldest son, who is on the autism spectrum, started high school. We spent most of the last year experiencing firsts with our new baby. And, we spent another year missing our Mary-Linda.
By the time March came around, we were in a pretty good rhythm. And then, the COVID-19 pandemic swept across the globe and we went into strict lockdown with my mom, who is 78 years old and has some health problems. My older sister, Melinda had Down Syndrome and lived with my parents her entire life. She passed away suddenly on Valentine’s Day this year at the age of 50.
Our new normal really isn’t normal at all. My mom has lived with us for the last several months. Our kids are home- which the baby loves, by the way! My husband and I are both working from home. It’s intense.
For now, there’s no getting back to “normal.” We’ve lost so much. If we focus on that, it becomes too overwhelming. So, instead we just try to focus on finding some joy and happiness in each day. My big kids are older, so chores have become a part of our new normal. We also eat so many meals together. We enjoy that. But, honestly, I am very nervous about our potential to be successful in distance learning this Fall. Creating space for school work and work at home and space for baby to flourish is proving to be very difficult.
As a practice, we pray together and attend online church as a family each Sunday. But, even that has begun to feel difficult to engage in as a family. We talk about our Mary-Linda. And, we recently celebrated 3 years since she was with us. We mixed that celebration in with happy, socially-distanced birthday parties for myself, my husband and 2 of our other living children. She’s a part of our family. She’s just not on earth with us. In our new house, her ashes sit on a shelf in my closet. It’s actually a very pretty place. I have a Mary-Linda bear sitting nearby and I look at it every single day. Sometimes, I hold the urn and completely lose it. Because, sometimes I just miss her so much that I can’t catch my breath. Having other loved ones in heaven with her does give me peace. Her Aunt Melinda. Her grandfather. Her great-grandparents. I know she’s well cared for and she’s in heaven. It doesn’t make us miss her any less.
As I close, I want to encourage others who are feeling stressed by grief, depression and the heartaches of being lonely in this pandemic: Please, do not put too much pressure on yourselves to “get back to” anything that you are not ready for. Losing a child is a devastating, often traumatic experience. Being in a pandemic and isolated from your family and your friends is challenging on so many levels. We are not going to come out of this unscathed and unchanged. But, you are not alone. Allow yourself time. Give yourself grace to be okay doing things differently.
For me, personally, I find comfort in knowing that we will see our Mary-Linda again when we all get to heaven. I also find comfort in knowing that we will get through this moment in time. Things will get better again. We have to believe. Until then, we will keep on remembering and keep on living our (not so) normal lives.
I just published Nothing is Normal in 2020 on medium link.medium.com/PhDyKxLZg9 #infantloss #medium #stillbirth #mommaof6 #nonewnormal #elmomma
